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Converging on patient care - why we need a cohesive approach to life after diagnosis

Insights

Converging on patient care - why we need a cohesive approach to life after diagnosis

Words Founders Factory

February 5th 2026 / 8 min read


Neurodegenerative illnesses are global by definition. They cut across borders, income levels, age groups and health systems. In recent years, they have blurred those boundaries even further, with more than three billion people, nearly half the world’s population, estimated to be affected by a neurological condition.

Yet despite the scale of the issue, the response remains largely siloed. Research, innovation and care models are often confined within nations, disciplines or disease categories. All while people living with these conditions navigate fragmented systems every day.

Health systems still organise care around institutions and processes, rather than the person living with a condition. A recent analysis in England documented by the BBC, found that billions of pounds are spent each year on patients who are medically fit to leave hospital but cannot do so because the community and social support they need isn’t in place. In the US a lack of cohesion and centralised planning is forcing patients to navigate gaps in continuity and take on the administrative burden of care themselves.  

The opportunities to converge globally by industry, technology and medical practice are huge. With a $60bn market cap for patient care tech, and with strides being made around the world in different and adjacent areas to neurological care, the issue comes down to focus. 

If we want to meaningfully improve outcomes for neurodegenerative conditions, we need to shift our focus. Not just toward better treatments, but toward better lives after diagnosis.

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Neurodegenerative care needs to start with patients


For people living with neurodegenerative diseases, progress is not measured in cures or clinical endpoints but whether they can move independently, communicate without frustration, and whether carers can spend time caring rather than completing paperwork. And ultimately whether a person can live with dignity for longer.

In the UK and Australia, rugby has been a particularly visible reminder of how devastating these conditions can be, with recent attention around figures such as Lewis Moody bringing renewed focus to motor neurone disease. MND also caused the death of fellow players Doddie Weir, Rob Burrow and Joost van der Westhuizen, whose cases have generated new discourse on a deeply personal, global issue. Rather than talking in statistics, they show the personal reality faced by patients and communities. 

Neurodegenerative conditions such as multiple sclerosis, motor neurone disease, Parkinson’s and Huntington’s disease affect millions globally, often over decades. We still do not fully understand how many of these diseases begin. We do not yet have cures. But that does not mean we are powerless - we just need to focus on living with conditions as much as curing them. Reasons include:

People retain independence for longer

Supporting daily function helps people remain active participants in their own lives. Even small gains such as walking further, needing less assistance, conserving energy compounds over time have massive benefits. Independence delays institutionalisation, reduces reliance on family members, and preserves identity and confidence.

Care becomes preventative rather than reactive

Patient-centred models prioritise early signals of change rather than waiting for crisis points that trigger hospitalisation. This is especially critical in neurodegenerative disease, where decline is often gradual and predictable but systems respond late.

Carers are supported, not stretched

Family members and professional carers are the backbone of neurological care, yet they are often overwhelmed by administrative burden, fragmented services and unclear pathways. Patient-centred care reduces friction and frees carers to focus on what only humans can do; providing empathy, judgement and presence for loved ones.

We need to converge tech and science on patient care, not just clinical treatment

We are living in a moment where developments in AI, ubiquitous sensing, robotics, digital biomarkers and connected health platforms are creating new pathways for understanding, supporting and enhancing human capability well beyond acute clinical care.

But too often these technologies are developed in adjacent domains outside neurodegenerative care, leaving a mismatch between capability and real-world patient need. Neurodegenerative disease doesn’t wait for perfect solutions; people need meaningful support immediately, and many technologies already exist that could be adapted and scaled with the right focus.

Improving patient independence

Assistive technologies from powered orthotics and wearable robotics to adaptive devices and environmental intelligence are core examples of how tech can improve daily autonomy. Assistive technology has long been used to help people perform activities of daily living independently, reducing reliance on carers and enabling participation in work, social and personal life. 

Neurotechnology and brain–computer interface (BCI) research are pushing boundaries too. We’ve seen recent promise with first trial of the Neuralink brain implant in London, allowing a patient to control a computer mouse, play chess and open files using their mind. The technology offers hope to those suffering from paralysis. This is just one example too. In Australia, Synchron, a leading brain-computer interface (BCI) company, has integrated advanced AI technologies (including Nvidia platforms) into implanted neural interfaces that allow people with paralysis to control computers and digital environments solely via thought. 

While the Neuralink and BCI products may be one of the more future-facing solutions, many research initiatives have also begun translating robotics into practical support: wearable robotics developed for gait training and mobility assistance can help individuals with muscle weakness or balance challenges remain active. This isn’t theoretical, applied research in human assistive robots shows tangible improvements in mobility support for people with disabilities.

Detecting progression earlier

One of the most promising areas of convergence between technology, data and patient care is in digital biomarkers and gait analytics. Wearable sensor technologies and AI-enabled gait analysis have shown strong potential to detect subtle behavioural and mobility changes associated with neurodegenerative conditions, changes that can appear before clinical symptoms are obvious. In the US, the RNS System from NeuroPace is an implantable neuromodulation device that monitors brain activity and delivers stimulation when abnormal signals are detected to prevent seizures. Last year an Ultrasound Helmet was developed to treat Parkinson’s uninvasively, stimulating precise points in the brain with ultrasound waves rather than deep planted electrodes. 

Digital metrics are also derived from gait features and are being explored as early indicators of progression in diseases like Parkinson’s and dementia. These approaches offer non-invasive, scalable tools that can monitor change continuously in the community, rather than episodically in the clinic.

Reducing administrative burden so carers can care

Neurodegenerative care is administratively intense. Carers and clinicians often spend hours on documentation, scheduling, compliance reporting and care coordination; tasks that detract from direct patient engagement.

AI-driven intelligent coordination platforms and integrated care workflows can reduce this burden. Applied research in AI for clinical documentation and decision support highlights how advanced data analytics can simplify routine tasks and surface insights without adding work for care teams.

Adopting systems that capture and organise information across the care process ultimately means we can free carers to focus on providing empathy and judgement for patients.

Improving symptoms and rehabilitation

Technology is already enhancing symptom management and rehabilitation in ways that support autonomy rather than just clinical outcomes. AI-augmented physical therapy, robotics-assisted rehabilitation and sensor-guided exercise platforms are advancing personalised therapeutic support.

BCIs like the Neuralink are promising new pathways for communication for people with severe motor impairment. And while many BCI applications remain in early stages, their rapid pace of development means these tools are increasingly viable. Patient-driven needs can help guide their translation too, the opportunity lies in connecting these adjacent innovations with defined care use cases so they don’t remain research curiosities.

Opportunity at the intersection

The gap in delivery isn’t a lack of available technology but a lack of alignment between what technology can do and what patients need day-to-day.

Adjacent technologies originally developed for elder care, general mobility support, sports performance, remote monitoring, rehabilitation robotics and consumer health are all relevant to neurodegenerative care. With the right evidence pathways and care integrations, they can move from emerging technology to everyday patient tools.

This convergence of engineering, AI, wearable data, robotics, sensor technology and care experience can and should be directed at lived experience outcomes, including:

  • Supporting patients to live autonomously for longer

  • Detecting changes early and sensitively

  • Reducing administrative friction for carers

  • Personalising rehab and support to individual goals

These are the outcomes that matter most to people living with neurodegenerative disease. With a cohesive approach that brings adjacent technologies into defined neurological care pathways, we can ensure innovations are not just powerful, they are practical, accessible and life-enhancing.

Despite growing scientific consensus on the scale of neurological disease, the global response remains fragmented

Different countries invest in different parts of the pathway. Some prioritise acute care, others long-term rehabilitation, others home-based monitoring or digital therapeutics. Many initiatives are excellent  but they are optimised for local reimbursement models, workflows or datasets. That makes it difficult for innovations to travel and for health systems to learn from one another quickly.

At the same time, neurology is becoming increasingly data-driven. Wearables, digital biomarkers and AI-assisted decision tools depend on data standards, interoperability and shared evidence frameworks all of which still vary widely across regions. Governance is often playing catch-up as neurotechnology accelerates faster than policy.

The result is not a lack of a lack of synchronisation, be it by country, industry or technology. If we fail to solve synchronisation, we risk a patchwork future: breakthroughs in some markets, stalled pilots in others, and the people who need solutions most left behind.

MSWA Neurological Care Accelerator a global programme grounded in Western Australia


One practical way to address this fragmentation is to create places where translation happens on purpose. Where early-stage ventures, clinicians and people with lived experience come together to co-design solutions and test them against real care constraints.

This is the logic behind the MSWA Multiple Sclerosis & Neurological Care Accelerator, based in Western Australia but built with a global outlook.

What makes this model distinctive is not just where it is based, but how it works:

Condition-informed, not condition-limited

Rooted in MSWA’s lived experience expertise, the programme supports ventures working across MS and other neurological conditions, including Parkinson’s, MND, Huntington’s, stroke and acquired brain injury. As well as across technologies such as AI, wearables, remote monitoring and digital health.

Designed to move beyond the theoretical

By giving founders direct access to clinicians and people living with neurological conditions, the accelerator ensures founders are challenged on what better means for patients; how their product fits into care workflows; what evidence decision-makers require; and where the ethical and trust risks lie.

Globally connected, locally grounded

Western Australia provides a defined ecosystem in which to pilot, learn and iterate quickly, while Founders Factory’s broader network connects ventures, expertise and capital internationally.

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